Next @bensfriends Twitter Chat is Tomorrow Sunday January 27, 2013 2PM EST/11AM PST/ 7PM UK use tag #bensfriends
Attention Deficit Hyperactivity Disorder (ADHD) Online Support Group
Twitter Chat
Hope everybody is well.
Would any of you be interesting in being a part of a twitter chat? It could be a fun way to learn about other communities on BF, share your experiences with a rare disease, tell your story and gain exposure for BF and all of our amazing communities.
Here are the questions we are thinking about using for the first chat:
1) How did you find BF?
2) How has Ben's Friends and social media improved your life?
3) What rare disease do you have?
4) how long did it take for u get the proper diagnosis?
5) How has your rare disease impacted your life?
6) What could be done better raise awareness for folks w/rare diseases?
7) What advice would you give folks recently diagnosed w/a rare disease?
8) What advice would you give to friends and family members that have a relative or know somebody with a rare disease?
We would use the site www.tweetchat.com for the chat.
Replies to This Discussion
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Permalink Reply by John "JC" Colyer on -
Next
@bensfriends Twitter Chat This Sun Oct 14 4pm Est/1pm Pacific time/9pm UK time, use tag#bensfriends Thanks!
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Permalink Reply by John "JC" Colyer on
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Next
@bensfriends Twitter Chat **TODAY** Sun Oct 14 4pm Est/1pm Pacific time/9pm UK time, use tag#bensfriendsThanks!
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Permalink Reply by John "JC" Colyer on
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Next
@bensfriends Twitter Chat this Thursday December 13, 2012 2PM EST/11AM PST / 7PM UK Time Use #bensfriends to follow chat
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Permalink Reply by John "JC" Colyer on
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Next Twitter Chat Tomorrow Sunday December 30, 2012 1PM EST/10AM PST / 6PM UK Time
When you join you post questions and put #bensfriends at end of post and it will show up on www.tweetchat.com/#bensfriends when you join chat
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Permalink Reply by John "JC" Colyer on
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Next
#bensfriends twitter chat tommorrow Tuesday January 15, 2013 5PM EST/2PM PST/10 PM UK - use tag#bensfriends
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Permalink Reply by John "JC" Colyer on
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